Helpful Resources

Cancer Survivors Network – an online community of cancer survivors and caregivers.

Reach to Recovery – a peer support program for people with a personal concern about breast cancer.

Both of these programs are offerings of the American Cancer Society Cancer Resource Network.  They can be reached by calling 1-800-ACS-2345 or visit: http://www.cancer.org

Look Good…Feel Better – a free program that teaches beauty techniques to women in active treatment to help them combat the appearance-related side effects of cancer treatment.  To find programs available in your area, call 1-800-395-LOOK or visit http://www.lookgoodfeelbetter.org or contact your local American Cancer Society.

Just in Time – provides a collection of soft hats, scarves (tie backs), and scarf pads (designed to be worn under scarves or hats to provide extra body, height and fullness). See styles and cost at http://www.softhats.com.  Although I wore a wig to work and social occasions, when at home I was more comfortable in a tie back scarf or sleep cap at night.  I did not personally use this product because I did not have the information available.  Their selections are much more stylish than the ones available to me at the time.

Breastcancer.org: a non-profit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer.

Fertile Hope 855.220.7777, fertilehope.org: a division of Livestrong, this organization educates cancer patients about fertility issues.

National Center for Complementary and Alternative Medicine 888.644.6226, nccam.nih.gov. Provides the latest news, research, events and clinical trials involving complementary medicine.

OncoLink, http://www.oncolink.org

CAREGIVING

Family Caregiver Alliance 800.445.8106, caregiver.org: offers information and advice, a navigator to help find local resources and services, and discussion groups.

Family Caregiving 101. familycaregiving101.org: Provides caregivers with the basic tools, skills, and information they need to protect their own physical and mental health while they care for a loved one.

Caregiver Action Network, http//caregiveraction.org

CLINICAL TRIALS

ClinicalTrials.gov 888.346.3656: Offers information for locating federally and privately supported clinical trials for a wide range of diseases and conditions, including cancer.

Coalition of Cancer Cooperative Groups 877.227.8451. CancerTrialsHelp.org: Contains a search engine to find cancer clinical trials close to home, a comprehensive self-study guide, patient discussion forum and helpful information for patients and caregivers.

FINANCES AND INSURANCE

NeedyMeds, needymeds.org: Offers information on patient-assistance programs for patients who can’t afford their medications.

Partnership for Prescription Assistance 888.477.2669, pparx.org: Help qualifying patients without prescription drug coverage get the medicines they need for free or at low cost.

RxAssist, http://www.rxassist.org

RxHope, http://www.rxhope.ocm, 877.267.0517

LEGAL ISSUES AND PATIENT ADVOCACY

Cancer Legal Resource Center 866.843.2572 disabilityrightslegalcenter.org: Provides free information and resources on cancer-related legal issues to cancer survivors, caregivers, healthcare professionals, employers and others coping with cancer.

Patient Advocate Foundation 800.532.5274, patientadvocate.org: Provides education, legal counseling and referrals to survivors concerning managed care, insurance, financial issues, job discrimination and debt crisis matters.

Foundation for Health Coverage Education, http://www.coverageforall.org

Patient Advocate Foundation, http://www.patientadvocate.org

TRAVEL AND HOUSING

Air Charity Network 877.621.7177, aircharitynetwork.org: Provides transportation to patients traveling for treatment.

American Cancer Society Hope Lodge 800.227.2345, cancer.org/hopelodge: More than 30 lodges throughout the U. S. offer free housing to patients and their families traveling for treatment.

Angel Flight Central, http://www.angelflightcentral.org, 866.569.9464

Joe’s House, http://www.joeshouse.org, 877.JOESHOU: Non-profit guide for cancer patients seeking lodging close to medical facilities. Provides search option for each state.

ADVANCED BREAST CANCER

Advanced BC, www. advancedbc.org

Her2Support.org, http://www.her2support.org

BrainmetsBC.org, http://www.brainmets.org

Living Beyond Breast Cancer, http://www.lbbc.org

Metastatic Breast Cancer Network, http://www.mbcn.org

Sharsheret, http://www.sharsheret.org

For a complete list of resources, visit curetoday.com/toolbox

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